Remember how i told you in my last journal i had been battling somethings... yeah.
after many years of problems I finally I had a Mri in May of 2014 because my hand and my feet started going numb along side my other symptoms i suffered for many years before hand , (Vertigo headaches ECT)... My Drs Nurse told me the results where "No orbital abnormality and no sign if MS" and the Dr. didnt give her any recommendations of what we should to do next. So I took matter into my own hands, because i had a weird feeling. I got the copy of the Mri and the report sent to me from the Imaging place. They they kindly over Nighted it to me. Low and be hold. There was something he didn't tell me. I had a 7mm Pineal Cyst. THO they RARELY are symptomatic he still had no right to NOT tell me. So i did research as i was curious of what it was. I found a support group on fb of other who had symptomatic pineal cyst and learned many of my symptoms matched theirs. The group was kind enough to give me some recommendations to drs who know more about them, and will even sometimes remove them if need be. Well I Contacted One Of the best of the best, not wanting surgery but just hoping he could confirm that i had a symptomatic Pineal cyst.
Do to the Rarity, I had to contact a Dr. out of state. I sent him all my drs reports, and all my mris. He looked over all my things, and had a phone consult with me on march 2nd.
On March 2nd Dr. Shahinian informed me that what we thought was a Pineal Cyst may actually be a benign Pineocytoma. This is a rare tumor of the pineal Region of the brain. Though we will not truly know until its out and pathology is done on it.
Do to the serverity of my now symptoms - Dizziness, vertigo (I have fallen many times), migraines, severe nausea, head pressure, stabbing pain behind eyes, shaky eyes, Flashing lights (like of one was in a room with strobe lights), Numbness in different parts of her body, ringing in ears, foggy brain, fatigue, and much more. Hew recommend Surgery.
i had another MRI on March 13th of this year (so 9-10 months from the last one) And it had shown that it had grown to 1cmX9mmX7mm. Last time in may 2014th it was 7mm length wise. So 7mm to 1cm in 9-10 months. Tho not alarming, still proves that even IF it is really a cyst its abnormal and needs to COME OUT. As i said tho Dr. Shahinian believes it is a Pinocytoma. But we wont know tell its out.
So now.. the fun part. My insurance is poo. And they refuse to pay because its out of state and do to the rarity... there no drs near me that can help or that even care. So i am trying desperately to Raise 167,000 USD. My surgery date is June 2nd but will need to be change as there no way at the rate i'm at... And they need it all upfront 45 days before surgery. Which is April 25th.
So yeah that's what i've been up to.
heres my go fund me if you would like to take a look.
If you could share it around, and even if you can donate that be very much appreciated. I understand if you can't tho. But every little but helps!